Monday, June 25, 2007

Let There be Dark - The Ceiling Fan Saga Continues - 6/25/07

Today I took a whole lot of clothes that I'd weeded out of my closet to a thrift store for donation. The shop's proceeds supports programs for persons with autism and mental retardation. The clothes were mostly business attire that will help other women still out there in the workplace. That makes me feel good 3 ways.

On the way home we stopped at a home goods store (Lowe's) to look for a fan for our master bedroom. We went back to Home Depot the other day where we bought the first one but they were out of the one we wanted. Anyway as we walked into this large store all the lights in the place went out and the emergency lights came on. I said to my husband "Is this an omen?" It turns out it was. We found a fan we wanted. It needed to be white to blend into the ceiling color, NO REMOTE CONTROLS, and be flush-mounted to the ceiling. Great. We took the fan up to customer service to arrange to get it installed. "Professional Installation" was number 13 on their list of customer services. Number 13, hmm I should have seen this coming. The girl behind the counter says "oh you have to go to the other side of the store to the *Installation Desk*. They'll set that up for you and then you bring the fan back here to pay for it." My husband and I both walk with canes, but the fan was in a cart, we could do this. So off we went to the other side of the store to the *Installation Desk* and the young man behind the counter said "Oh, we don't do that here. Take the fan to customer service." I said, "they just sent us here." So he gets on the phone and we say "never mind". We went to put the fan back and he chased after us, he had found where you go in the store to arrange for installation. Picture if you will an equilateral triangle (a really big one); yes we're going to the last point on that at yet another end of the store. My husband just wants to get this done, so we go down the aisle. The young man and another man are now trying to figure out how they set this up and proceed to tell us that the installers (a sub-contractor) will come out and give us an estimate and then come back a second time to install. I said "the place is already wired for the ceiling fan", but alas they still require 2 trips. I said, "I'm not waiting for the installer twice, no thank you." We left and this time we didn't put the fan back. We'll go back to Home Depot in a few days and maybe they'll have the fan back in stock and we can get the installer to come out once.

The ceiling fan we do have installed has resumed being a fan and no longer seems to be a communication tool between myself and the spirit realms. Alas, I kind of miss it.

Tomorrow its a clinic day at NIH for Warren, but no chemo. Friday he'll get his CT scan and then the following Monday they'll re-stage his disease and we'll see if we continue with this protocol or something else.

I learned recently that the husband of a woman I used to work with was just diagnosed with base of the tongue cancer which has spread to the lymph nodes in the neck. That's exactly how Warren's disease began. I want to call her this week and share our experiences with her to give her some hope, because where they are right now is a very frightening place. The standard treatment for this when it first presents is 9 weeks of daily radiation and weekly chemo. Very early into that your throat becomes almost too painful to swallow. He has gotten a feeding tube which Warren didn't the first time (but wished he had). The good news is that, that treatment put Warren in remission for a year and every extra day you get with this is a blessing.

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