Today was a long one. We left the house at 6:30 a.m. so that Warren would have enough time to get his blood drawn, an EKG and a chest x-ray before his 9:00 a.m. appointment for the insertion of a peripheral IV. After that we had an 11:30 in the ENT clinic followed by an Oncology clinic visit, a visit to the admissions office and then on to his hospital room. There was no time for lunch. Once he got settled in his room he ordered a Skandy shake (a fortified milk shake that the nutritionist at NIH pushes). I waited until I got home at 6:00 to get dinner.
They decided that they were not going to start the chemo today. It would have been late afternoon and it takes 3 hours to infuse the drugs. Since this will be the first time he's gotten them they wanted to be around in case there were any problems. So now he's receiving chemo at 9:00 a.m. tomorrow morning. This means of course that chemo will be Tuesday through Saturday. I guess it can't be helped.
We found out that his tumors had grown slightly since the last scans done in March. They'd grown some then too so its good he'll be back in treatment. He told me last week that he'd started getting headaches again. The same type of headache that was the symptom that got him diagnosed to begin with 3.5 years ago. Nothing is showing up in the scans yet in that area, but it will need to be watched. I'm assuming that he'll go through 2 cycles of chemo (2 months) before he is re-scanned.
And so we begin this journey again. We will try to found our balance in the new schedule and fit our lives in around it. How I love this man.
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