I suppose I should offer a little update on what's going on here. I've been too tired lately to spend much time on the computer.
Hospice increased Warren's pain medications again this week and also added the steroid dexamethasone to reduce tumor related swelling. The steroid seems to have given him a boost in energy. He's sleeping less during the day. He's comfortable most of the time, unless he tries to do too much or is up walking around too much. He's working on the taxes of all things.
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God bless men!! Tom had his heart attack April 13th; our taxes were in on time that year. He talked me through it from his hospital bed.
ReplyDeletethank you for the update - glad Warren seems comfortable.
ReplyDelete((Hugs..))
ReplyDeleteWell, if he's feeling that much better...we can always accommodate and send out ours ...glad to hear he's up a little more and has some energy. Hang in there sweetie.
ReplyDeleteTaxes...wow he must be feeling better.
ReplyDeleteI pay someone to do my taxes. They scare me to death. He is braver than I.
ReplyDeleteThanks for Saturday, we had fun! Glad things are relatively stable!
ReplyDeleteI was wondering, and certainly understand your being tired... thanks for the update Cheryl. Taxes can be distracting... clearly, he is thinking of how he can help you still... what a great guy! 0:)
ReplyDeleteThanks everyone. He's not really feeling better, just more alert with the addition of the steroids. I think he's afraid I won't be able to do the taxes correctly even with the purchase of Turbo Tax. He's trying to spare me the hassle and I appreciate that, but I don't think I would choose doing the taxes in my last few days.
ReplyDeleteWe may be adding morphine to the chemical stew he imbibes daily soon.
If this is too personal, please forgive my insensitivity, but are they saying how much time he does have left?
ReplyDeletePerhaps it comforts him to feel he is spending his last days doing something that is caring for you. But I also understand your wish to be doing something else. It is hard.
ReplyDeletePatti, no one gives you that information and I suppose that's good, for in truth no one knows. It could be days or weeks.
ReplyDeleteBennett you're right it does comfort him. He has always taken care of me...afterall I am his "child bride" as he calls me. LOL
That's true. They told us one time with my brother that he would be passing away very soon and hospice bought my sister and I tickets to FL so we could say goodbye. This was after he was in a coma for about 2 years. A year and a half later, he died. If there is anything I can do to help, please let me know.
ReplyDeleteI'm glad he is being kept comfortable. To amplify your answer to Patti, they don't tell you that because they honestly don't know. They know the GENERAL trajectory... they know that for every 100 patients with diagnosis X at stage Y, 60 will live so long (the middle of the bell curve), 15% will live a little longer or less, and an additional 5 % will either die earlier than expected or live much longer than expected. While the bell curve is pretty reliable, its application to any given patient isn't.
ReplyDeleteThe best they can say is whether the medicines are being effective or not, and whether the disease is progressing or not. But when the lines will cross and this phase of life come to its end, no one knows for sure.
I've seen enough patients and even people who didn't seem sick (such as my father) who seemed to know when the end was coming that I give more credence to a person's own assessment of things than to anything a doctor says.
(It was spooky with my father... he showed no signs of illness. We were living with them at the time between stages of our life, but were going off to visit friends. He had never before asked us for this, but he insisted on having the phone number of where we'd be staying. Had he not done so, they would not have been able to contact me when he died, and I may not have even made it home in time for the funeral much less preached at it.)
I agree with you completely Peter. I think people usually always know when their time is short at least in the subconscious level. Your Dad probably didn't even know why he asked for that phone number at that time.
ReplyDeleteYeh... I think that if we really are well attuned to our inner selves, we know more about what's going on than any medical doctor, psychiatrist, psychologist, or pastor does.
ReplyDeleteWith my father, that was just one of those spooky things which reminds me that... there's a lot more going on in this world than can be measured by meters or documented on charts.
I don't tend to go looking for angels or divine intervention or other things paranormal, but I can't deny them either.
On a related note... I can really relate to the whole struggle you both feel about wanting to take care of each other. Tess and I go round in that circle too... for the best of reasons, but...
Hi Cheryl,
ReplyDeleteMostly - glad to see you hanging in there.